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            Chronic Fatigue Syndrome Electronic Newsletter

 --------------------------------------------------------------------
 No. 12                    January 18, 1993             Washington DC
 --------------------------------------------------------------------

             FIBROMYALGIA CONFERENCE FEB. 6-8 IN SEATTLE

        CONTENTS

 >>>1.  Fibromyalgia Research Conference Feb. 6-8 in Seattle
 >>>2.  CFS/ME world action called for May 12
 >>>3.  New York Times story on CFS
 >>>4.  CFIDS Awareness Rally in Sacramento, Feb. 6

------------------------------------

 >>>1.  Fibromyalgia Research Conference Feb. 6-8 in Seattle

A research conference on fibromyalgia will be held on Feb. 6, 7 and 8
in Seattle, Washington state (USA).  Related topics to be covered
will include: CFS; myofascial pain; immune system; environment;
nutrition; alternative medicine; current research results; TMJ-carpal
tunnel syndrome; disability & survival strategies; and other topics.

The program, subject to change, is as follows:

 Saturday, Feb. 6

 12 pm - Dr. J. Hillson, "How to Find the Right Doctor and Treatment"
  1 pm - Dr. M. Yunus, "The Neuroendocrine Hypotheses"
  2 pm - Dr. R. Bennett, "Sleep, Hormones and Muscle Pain"
  3 pm - Sharon Clark, RN, PhD, "Exercise Strategies for Fibromyalgia
         Patients"
  3:30-5pm - Dr. R.P. St. Amand, "Interweaving Diseases /
         Fibromyalgia & Hypoglycemia / Effective Treatment"
  5:15-6pm - Panel discussion

 Sunday, Feb. 7

 12 pm - Dr. H. Gordon, PhD, "TMJ Disorders"
  1 pm - Dr. C. Thompson, "Multi-Disciplinary Treatment Approach to
         Fibromyalgia"
  2pm-4pm  - Panel discussion: "Self Management"
             S. Weidenfeld, PhD., "Daily Issues of Fibromyalgia -
                Attitude and Spirit"
             P. Hirsch, PhD.
             R.M. Hayes, "How the Employer Can Help"
  4pm-5pm - Attorneys speaking on disability issues: C. Anderson, B.
            Doyle, M. Rosenberg

 Monday, Feb. 8

 9am-11am  Workshop for physicians (by reservation only; fee is $15)

 12pm-4pm  Medical Trade Show
 - 20 to 30 booths featuring alternative treatments
 - massage demonstration
 - attorneys on disability claims
 - Social Security Administration representatives

The sessions on Feb. 6 & 7 will be held at the Univ. of Wash. Medical
Center, Health Sciences Bldg., Hogness Auditorium.  The Feb. 8 events
will be at the Executive Inn Restaurant, 200 Taylor N.

Fees: $60 for all 3 days, $50 for 2 days, $35 for 1 day.  Make checks
payable to: Seattle Fibromyalgia Association, PO Box 77373, Seattle,
WA  98113.  There are additional events (gala dinner, etc.) not
described above which will require additional fees.  Telephone
contact: 1-206-362-2310.

[Thanks to Molly Mack of the Internet FIBROM-L discussion group for
announcing this event.  Details provided by Patricia Hendrickson of
the Seattle Fibromyalgia Association.]


 -=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-

 >>>2.  CFS/ME world action called for May 12

CFS leader Tom Hennessey is calling for a CFS awareness day to
observed around the world on May 12, the birth date of Florence
Nightingale, the pioneering nurse who for a time had a debilitating
CFS-like illness.  Mr. Hennessey has been promoting CFS awareness for
many years, and was seen recently in a featured news segment on the
"MacNeil/Lehrer News Hour", a TV program widely watched in the USA.
In a recent letter from Hennessey to CFS support groups he says "News
organizations have short time periods for local stories on every
evening broadcast.  Wouldn't it be great to have spring flowers
blossoming in front of every state capitol in the country, and have
the camera pan down and see 5 to 500 people strewn about with cots,
sleeping bags and pillows?  They could all have signs listing their
former occupations, the number of years they've been sick, and the
annual taxes they USED to pay!  AIDS activists get tons of press --
why not us?"

Hennessey is urging all CFS patients to work with their local support
groups to organize this event in their nearest cities and state/
provincial capitals.  He has received positive responses from groups
throughout the USA, Canada, Britain, New Zealand, and South Africa.
If you don't know where your nearest local support group is located,
contact one of the following national groups:

 CFIDS Assoc. (USA), PO Box 220398, Charlotte, NC 28222-0398
 National CFS Assoc., 3521 Broadway / Suite 222 Kansas City, MO 64111
 Nightingale Res. Fdtn., 383 Danforth Ave., Ottawa, Ontario  K2A 0E1
 Canada ME Association, 246 Queen Street/Suite 400, Ottawa K1P 5E4
 ME Association (UK), Box  8, Stanford-le-Hope, Essex SS17 8EX
 M.E. Action Campaign, P.O Box 1302, Wells, Somerset  BA5 2WE
 ME/CFS Society of Victoria (Australia),
    24 Livingstone Close, Burwood, Victoria 3125
 ME/CFS Society of New South Wales, P.O. Box 449, Crows Nest NSW 2065
 ME/CFS Society of South Australia, P.O. Box 383,
    GPO, Adelaide, South Australia 5001
 ME Syndrome Society of Queensland, P.O. Box 12,
    Oxenford, Queensland 4210
 A.N.Z.M.E. Society (New Zealand), P.O. Box 35-429,
    Browns Bay, Auckland 10
 M.E. Stichting (Netherlands), Postbus 57436, 1040 BH  Amsterdam
 Norges M.E. Forening (Norway), Eikveien 96A, 1345 Osteras
 Hong Kong ME Information, 60B Conduit Road, 3rd floor, HONG KONG
 ME Assoc. of South Africa, 16 Oakleigh Drive, Howick, Natal Province
 ME Awareness Group (South Africa), 66 Third Street,
    Lower Houghton, 2198

[Information provided by Tom Hennessey and the CFS Resource File.]


 -=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-

 >>>3.  New York Times story on CFS

The New York Times published a story titled "3 Centers Pressing for
Causes Of Chronic Fatigue Syndrome" in its edition of Wednesday, Jan.
13, 1993.  The news article, written by Sandra Blakeslee, describes
current research at medical centers at New Jersey, Massachusetts and
Colorado.  The article describes an interview with NIH's Dr. Stephen
E. Straus and states "many leading researchers are now convinced that
patients are telling the truth, Dr. Straus said."

A search for ways to diagnose the illness is being conducted at the
Chronic Fatigue Center in the Veterans Affairs Hospital of East
Orange, New Jersey by Dr. Benjamin Natelson.  Cytokine research is
being conducted by Dr. Anthony Komaroff at the Chronic Fatigue Center
of Brigham and Women's Hospital in Boston.  A search for patterns of
symptoms that differ significantly from healthy controls is being
undertaken by Dr. Jim Jones at the Chronic Fatigue Center at the
National Jewish Center for Immunology and Respiratory Medicine in
Denver.  The patterns being examined include differences in sleep,
temperature, inability to concentrate, muscle fatigue and allergies.

[Information derived from article published in the New York Times.]


 -=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-=-

 >>>4.  CFIDS Awareness Rally in Sacramento, Feb. 6

The Sacramento (California) CFIDS Support Group hopes to raise the
awareness of physicians regarding CFIDS/CFS as they attend a medical
conference on infectious diseases on Saturday, Feb. 6.  The support
group is asking patients to participate in their event which will
take place between 11 AM and 1:30 PM at the Sacramento Hilton, 2200
Harvard.  For further information contact any of the following:
Stephen Barnes 1-916-369-8228 6pm-9pm Mon-Sat; Ann Sarli 1-916-
454-0454; Kate Grebitus 1-916-489-4331.

[Information provided by the CFIDS Association.]


 ===================================================================
   CFS-NEWS (ISSN 1066-8152) is an independent newsletter edited
   by Roger Burns in Washington D.C. and is distributed on the
   Fidonet CFS echo, on Internet, and through the USENET Newsgroup
   bit.listserv.cfs.newsletter.  Back issues are on file on the
   CFIDS/CFS BBS in Maine USA at telephone 1-207-623-8486 in file
   area H.  Suggestions and contributions of news may be sent via
   Internet to CFS-NEWS@LIST.NIH.GOV, or via Fido NetMail to
   CFS-NEWS at 1:109/432, or post a message to the CFS echo or to
   newsgroup alt.med.cfs.  Patients should read the resource file
   CFS-RES.TXT available on the BBS mentioned above and elsewhere.
   Copyright (c) 1993 by Roger Burns.  Permission is granted to
   excerpt this document if the source (CFS-NEWS) is cited.
   Permission is also granted to reproduce the entirety of this
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